First, no that wasn’t a typo in the title and is actually setting up a funny story and new nickname for Chris. CVS called and apparently their automated system doesn’t know what to do with her name, so it called her Ceelan. Chris has been calling her that for days now and laughing every time, so we may hang onto it for a while as her new nickname. :):):)

Next, I wanted to give an update on our cutie, because we will be posting pictures in the next few weeks and I didn’t want anyone to panic. Caelyn was our Baby A, which means that she was the lower baby and was head down most of my pregnancy. Because of the extra weight of two babies pushing on her, she ended up with a crooked skull and tightened neck muscle on one side. The terms for these are plagiocephaly and tortocollis and since they happened in utero, we have been working with her since birth with repositioning and now stretches. We have a referral into physical therapy, to see if we can have someone come to our home to work with stengthing exercises. One of the big things with tortocollis is that babies tend to hang their head to one side and this can affect future things like crawling and walking, so since she is more mobile now, we are choosing to address this as seriously as possible.

With that said, we are also opting to get her a DOC band for her head. She will be wearing it 23 hours a day for about two months and it will allow her head shape to even out over those months. This not only will improve her head shape, but also her facial symmetry. In severe cases where this is not corrected, other conditions can pop up later in life, like needing ear tubes for drainage, a cross bite that needs dental work, etc. It is going to be a rough few months, but we have opted to do this to give her her best chance to continue to be healthy in the future. We could also use prayers and thoughts as we do this. As you know, I am currently staying at home and will be returning to an internship. Financially, things are tight and since our insurance considers this cosmetic, despite the known developmental and health risks. and we are having to pay for it ourselves. Please also pray that she will adjust well these next few months and that the helmet will work as fast as possible.

Overall though, we are not worried and know it is completely fixable at this point. Chris even jokes about getting Kira one, so she can feel special too. We are staying lighthearted about it and are hoping our attitude rubs off on our girls as well.